Milena has gained 6.4lbs in 9 days, and they are monitoring her weight gain and labs closely.
She is exclusively gtube fed and we are in process of switching from continuous feeds to bolus feeds. Her self aggression has almost completely disappeared, and her face is looking healthier and healthier every day.
Sleep is still her biggest struggle and she wakes many many times throughout the night.
Anyone have any recommendations for older kid diaper solutions? She soaks through everything as soon as she pees. We've tried diaper under pull up, pull ups doubled up, pull up under goodnights, diaper liners inside of all of the above to help with absorbency......nothing is containing her massive output.....ideas?
And look how clear and wound free her face is!!!!
We have 7 doctors appointment next week, pray for both of our sanity!
Grow Millie Grow!!
So pleased to hear you are discharged... it will be so much better for you all to be together !
ReplyDeleteKeepeing the prayers going ! :)
Wow! That was quick! Glad to see that she is gaining weight already. How are all the kids adjusting?
ReplyDeleteHave you tried putting rubber pants over her pull ups? Also some pull ups are better than others. We also use a hospital pad under just like they have on the hospital beds. It may help when you switch from continuous feeds also. Good luck!
ReplyDeleteAlso, have you tried cloth diapers?
ReplyDeletePraying for you all! Tried to message you on facebook but I just read on here that you are off for a while, many prayers and much love to you all!
ReplyDeleteThere are youth sized diapers available through medical supply companies. We have them shipped to the house monthly for Silas & Andre. You can contact DME for a list of suppliers local to you. They may even be covered by insurance, ours are.
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